Feb Visit to the Dr.

I saw the Dr on Feb 10th. Still with altered taste. (I call it chemo tongue!!) and also more fatigued, probably drug related. She changed my seizure med to topramax 2x day to see how that works. She wanted to know when I was going to come off the decadron. I told her that I thought it was helping my fibro, and she thought that was great, but wanted to decrease the dose to .5 mg then eventually come off it. She doesn't like the long term side effects. We talked about taking ritalin instead for the energy. She explained about the frontal lobe and the radiation. Sounded reasonable to me. I took the prescription and dropped it off at the pharmacy on the way home. Turns out, that it has to be prior approved. It was, and I picked it up, but haven't started it yet. Too many med adjustments now.

I cut back to .5 mg on the Decadron for 3 days, then tried .25 mg for 2 days and started with a headache and feeling more tired so I went back to the .5 mg for now. It was too much too soon. In the middle of this, I was also weaning off the zonisimide at night and taking the topramax 2x a day. All I needed was to put myself in an adrenal insufficiency!! (Ok, too much nurse talk!!)

Just completed the 6th cycle of my chemo. This time, the copay was only 10.00 instead of 100.00. I asked why and if they were sure, and they told me I must have had a deductible to meet for Jan. ????
So, I called to find out if why I had to pay 100.00 in Jan and wanted to see if I could get a credit.
We have new insurance as of Jan 1st. BC/BS is the administrator and Walgreens is still the drug provider, but the plan structure is different. After being on hold for what seemed a long time, I spoke with Emily. She advised me that I should have pd 100.00 this time too. (crap) She said someone would be getting back to me. I'm still waiting!!! I'm sure they will catch up next month.

Donna and Paul were here last weekend. Paul and Tracy went to Falcon Field to a car show. It's also where the Air Force museum is. Paul is a history buff, so he really enjoyed that. Donna and I went to Casa Grande to the outlets. We didn't go by the highway and took the surface street. We were in the middle of nowhere it seemed, although the road we were on was shortcut. Donna asked me if these were the brain tumor directions!! I didn't mind going that way. I haven't seen that area before. Not much there at the outlets. Seems like stores have come and gone with the economy. We met Steve and Kathy in Scottsdale for dinner that night at a Mexican restaurant. I haven't seen Steve in awhile. Last time was at his house, probably 2 summers ago, but we have been keeping in touch by email and facebook.

My trip East is all set up. Leaving on March 19. Heading to Framingham until Thurs, then up to VT to see my friends and Tracy's family there until Sun. Go back to Framingham Sun. and back to AZ on Mon. the 29th. Looking forward to it.

Gotta get back to my quilt. It's almost done. I want to bring it with me when I go.



So, I have another MRI to be scheduled March 8th. See the Dr March 10 again.