Last week, in the middle of the night, I got up to go to the BR. I had a tremendous headache. I layed there and thought what are you waiting for? Get to the ED. So, I woke up Tracy and asked him to take me to the ED. I was able to get some meds to relieve it, and another CT scan and was able to go home. I rested for the remainder of the day and went to bed early that night. I called the Dr just to keep her in the loop, and she wanted me to come in sooner than our already established appt on Aug 2nd. I brought my CT scans and reports with me to the appt. We looked at them together and she was not suprised to see the blood in the ventricle. Common problem for a post op needle biopsy.
So, I started on chemo this week. I will have another MRI for the Aug visit on my birthday. (It's a good thing to keep having birthdays) I never expected to make it to now. It will be 13 months this week since I was diagnosed.
I will be going East for # 2 grandson in Sept. for a 10 day vacation. Can't wait for that. Marisa will be 2 on August 18th. I will have to send her a package with goodies!
They are on the Cape this weekend until Tuesday with their Dad, Teri, Erin and Greg.
Not sure who else is there. I was invited to go, but wasn't able to. Hope they are having some fun!
Monday, July 26, 2010
Friday, July 16, 2010
Biopsy of changing MRI
We have been watching the changes on the MRI since May 2010. No way to determine the difference between new tumor or radiation necrosis. The radiologist suggested new tumor and Dr Ashby wasn't so sure. So I had another one (MRI) in June (1 month in between instead of 2) Dr Ashby brought the results to the Tumor Board at St Joes. They recommended a biopsy to determine further treatment. I had that done last Thurs morning. 1 night stay in the ICU and another night out on the floor. They were watching for any more bleeding in the ventricle. 5 tissues samples were taken. So far the preliminary path report just suggests radiation necrosis and gliosis. (good news in the big picture) Final path is still pending. They had to send it out again to get another set of eyes on it. I am taking it easy for now. As Tracy said, this may be the best you can be. So, each day I make a to do list and get what I can get done. I have another appt with Dr Ashby on Aug 2nd to further plan the road ahead. I am out on short term disability with supplemental PTO time to make a full paycheck for now. That will go to August 17th, then a reassessment will need to be done. Long term disability is a bit further ahead without any money coming for a few weeks.
Today, I will take a look at the budget and determine where we can cut some more out. Not much left.
I hope to be able to contact the mortgage people and see where I can get there. I hope they can help in some way to reduce the payments. I will have to claim a financial hardship to them. Not a lie.
Plans to go East in Sept are made. Hopefully, Lindsay will be able to hold on until her scheduled C section on 9/3.
More later.
Today, I will take a look at the budget and determine where we can cut some more out. Not much left.
I hope to be able to contact the mortgage people and see where I can get there. I hope they can help in some way to reduce the payments. I will have to claim a financial hardship to them. Not a lie.
Plans to go East in Sept are made. Hopefully, Lindsay will be able to hold on until her scheduled C section on 9/3.
More later.
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